November 2013 Family Photo

November 2013 Family Photo

Wednesday, August 27, 2008

Rollercoaster of Reflux :(

Okay, so everyone has been asking me about why I never update the blog. Well, for Caroline's first few weeks, she screamed for hours. We are talking she was only sleeping 4-5 hours in a 24 hour period. The 4-5 hours only consisted of 20 minute cap naps. I knew something wasn't right. After going to the pediatrician many times, he finally referred us to a GI specialist. All of the doctors kept asking me if I had ever seen blood in her poop. My answer was always "NO WAY". Luckily, while my mother-in-law and I were at the GI visit, Caroline pooped. They tested it and sure enough there was microscopic blood. So, of course I was like what does this mean?? Well, it meant that Caroline had a horrible protein allergy found in formula (breastfeeding didn't work, will blog about it later). We also had the barium swallow test and we could see the reflux coming right back up. Poor baby!! I just want to take all of her pain away and let me have it :( So, after many trial and errors we have finally found a formula that works for her, it is Nutrimagen AA (amino-acid based). It can't be bought at the stores, but ordered through Enfamil or a pharmacy. It costs between $30-60 per day depending on how much she drinks. We are still in the process of trying to see if insurance will pay for it. We could seriously have a personal chef for what it is going to cost us per month. Let's just pray that insurance pays for it. She is also taking 30 mg of Prevacid for reflux. I have and still in the process of buying all kinds of things elevated. She can't be laid flat on her back anytime after a feeding. So, we keep sweet baby elevated. So, I hope she outgrows both of the problems. If anyone has dealt with either feel free to give me any tips!!

2 comments:

Anonymous said...

Amy,

It hurts me that baby Caroline
has had so many problems.
I pray everything gets better for her.
I do not know if you have a
prop up infant sleep positioner.

They help with reflux.
www.arpillow.com
www.tuckersling.com
www.pollywogbaby.com

Amanda Smoke said...

I was searching online for decorating ideas for a lingerie shower I'm hosting, and I just happened upon your blog! I noticed this entry about your baby having reflux ... I have a 1 year old baby girl, and she had terrible reflux when she was newborn. We never had her tested for blood in her stool, but she was ALWAYS spitting up the entire first few months. It was really upsetting - I remember I cried all the time (and did tons of laundry), but she did outgrow it. I gave her cereal at about 3 months, which was kind of early, but it helped with the spitup (and she slept GREAT because her tummy was full). Also, I put a book under one side of her mattress to elevate her head. That seemed to help with the reflux, too. We had good luck with Similac soy formula, but we were very close to trying the Nutramagen also. Just know that it does get better, and as long as she's gaining weight and growing, she'll be ok! Hope that helps!